Análise da vivência de estudantes universitários diagnosticados com Lúpus: um estudo de caso no Centro de Estudos Superiores de Parintins, Universidade do Estado do Amazonas

Abstract

Systemic lupus erythematosus (SLE), as a chronic autoimmune disease, imposes significant challenges on the academic routine of university students, affecting both academic performance and emotional well-being. This research aimed to analyze the academic experience of students diagnosed with lupus at the State University of Amazonas (UEA), Parintins campus, seeking to understand the difficulties faced, coping strategies, and perceptions regarding institutional support. It is a qualitative, descriptive, and exploratory study, conducted between August and November 2025. Data collection was carried out through a structured questionnaire and semi structured interviews with five university students diagnosed with lupus, regularly enrolled in different UEA courses. The results indicated that all participants face difficulties in reconciling medical treatment with academic activities, reporting frequent absences, extreme fatigue, low productivity, and emotional impacts such as fear, insecurity, and feelings of exclusion. Furthermore, the study found the absence of specific institutional protocols for chronic illnesses, as well as limited understanding from some faculty members regarding the students' specific needs. It is concluded that the academic permanence of students with lupus depends on the implementation of inclusive institutional policies, faculty sensitization, and continuous psycho-pedagogical support to ensure an equitable and respectful educational experience.